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Jen

Jennifer shares a laugh with tutor Geri Walsh
 

Jennifer was 5 years old when she was diagnosed with acute lymphocytic leukemia. During two-and-a-half years of treatment at Cincinnati Children's Hospital, she was absent from school frequently due to high fevers, hospital stays, and clinic visits.

After her treatment ended, Jennifer became frustrated because she was having difficulty comprehending information and doing math problems in her second-grade class. "I had to read things over and over. I knew something had changed in my brain."

With the help of the school system and a Children's Hospital advocate, Jennifer was placed on a specialized education plan that accommodated her special needs. She is tutored every day in school, and she gets extra time to finish tests. To stay organized, she uses colored markers to highlight information and takes a laptop to class.

"I've learned that I have to be an advocate for myself and speak up when I'm having a problem," Jennifer said. Her advice to other survivors struggling with learning disabilities:

1. Talk with your parents and teachers. Get help.

2. Be patient. It will get easier.

3. Don't worry about what the other kids are doing. Take care of yourself!

4. Accommodations for your learning disabillity is important. Don't feel ashamed to take advantage of extra services.

Jennifer is now in the ninth grade. Her career goal is to teach children with learning disabilities.

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Hook Up To Help

Just as cancer affects you physically, it can impact the way you feel, think and learn. Common emotional problems after cancer include depression, anxiety about recurrence, and anger, as well as sex and dating issues. Learning problems may arise as a result of cancer-related cognitive changes and/or long absences from school during treatment. The important thing is to pay attention to your needs and get help.

Many resources are out there for you. Although SURVIVOR ALERT does not endorse external Web sites, we provide the following links as helpful resources.

Peer2Peer
bullet Planet Cancer offers an online forum and a
clearinghouse for young adult survivor groups around the country.
bullet Ulman Cancer Fund for Young Adults' Survivor and Loved Ones Network, helps peers connect for support and information exchange.
bullet Lance Armstrong Foundation. Information on physical, emotional and practical cancer topics, ways to get involved, and community and research programs.  Find out what LAF is doing in your state. Order LAF's free Living After Cancer brochures.
bullet Cancer Survivors Network of the American Cancer Society. Personal stories, discussions, and expressions of caring among survivors just like you.
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Long-Term Survivors Discussion Group, Association of Cancer Online Resources (ACOR). The group currently has 467 members and is a very active discussion group
primarily devoted to late effects of cancer treatments and other issues that relate to long-term survivors. 

Mixed Bag: Professional & Peer Support
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LIVESTRONG SurvivorCare provides online and telephone support groups for young adults, as well as educational telephone workshops. SurvivorCare is a program of the Lance Armstrong Foundation, in partnership with CancerCare, Patient Advocate Foundation, and the University of Pennsylvania Abramson Cancer Center.

bullet CancerCare offers counseling on line, by telephone, and (in a limited number of locations) face-to-face. CancerCare also provides educational workshops and materials, as well as assistance with treatment-related expenses for qualified survivors.
bullet Wellness Community offers interactive educational podcasts and webcasts, as well as a monthly networking group for young adults with cancer.
bullet Beyond The Cure sponsors teleconferences and survivorship conferences featuring national experts on survivorship issues and concerns after treatment.
Support Resources & Referral Networks
bullet I’m Too Young for This is a resource portal for young adults living with, through and beyond cancer.
bullet Vital Options International hosts The Group Room, a syndicated weekly radio talk show on cancer; the National Young Adult Cancer Awareness Week ( first week in April); and a Web site offering resources for young adults.
bullet The LIVESTRONG Young Adult Alliance is a coalition of organizations whose goal is to improve survival rates and quality of life for young adults with cancer.


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